A Second Poem…
July 21, 2009
It’s Not About Me…
April 24, 2009
This isn’t a post about me or maybe it is…
Someone I care about very much has been diagnosed with bi-polar disorder – we will call him “H” for Husband and her “W” for Wife. It’s been a hard road for this family to get to where they are right now. Both H and W have been down a road with lots and lots of obstacles – some seemingly insurmountable and unsurvivable but still, they have endured. H finally will get the help that he needs. I’m so proud of the way they have handled things – especially W, she has a grace and presence of mind that awes me daily.
So why am I writing about this on my blog? One, because I love them and two, because it’s a reminder to me that I need people in my life who support me and I want to have people who I can support back. Sometimes I feel like I have taken more than I have given in the last year. I know that’s “allowed,” I know that’s okay given the circumstances but I’ve never been that person before…someone so needy, where it’s all about me…I guess it’s a little glimmer that I’m getting back a little of the me that isn’t heartbroken, lost and hurt. I know she’s in here somewhere, she just has a hard time swimming to the surface…
There is a song by 3 Doors Down called, “Let Me Be Myself” and while whole the song speaks to me, two lines really explain how I feel lately:
“I’ll never see the light of day living in this cell.”
“It’s time to make my way back into the world I knew.”
Maybe that’s where H is right now – making his way back.
Happy Holidays
December 17, 2008
So I knew the holidays were going to be tough but actually, it’s been a little easier than I thought it would be. I have been staying busy, spending time with friends and hubby (who practically beat the Christmas spirit into me) and in general, trying to make peace with this time of year. I received some lovely cards and emails from people, taking the time to tell that they are thinking of me and the boys right now and you have no idea (actually if you are my people, you do) what that means to me.
There is this fear in every person who has lost a child that your child will be forgotten. When people say to me “you know, I was thinking of you and the boys,” I know that they were remembering what the boys meant to me and Hubby. You would think that we would want to forget but I don’t and neither does Hubby. The boys existed and I know that no one got to see them (there are pictures but they are safely tucked away with a family member until Hubby and I are ready and perhaps, one day, we will share them but I think I want to spare you from looking at a picture of a lifeless baby) but let me assure, they existed, they were real and I love them and miss them.
I guess what I am saying is, that despite the awful loss that I have experienced this year, I have been reminded of some wonderful things that I do have in my life. Your cards and emails remind of that everyday. I save everyone of them – I do! Emails and cards. My husband, my friends, my family….people who care for me enough to email me out of the blue or call me to check in on me, that’s a great gift.
So thank you and Happy Holidays. I love and appreciate all of you. While I have a feeling next year will be better, I know that I will always need and cherish every one of you and I am grateful for all of you.
Honoring My Boys
October 15, 2008
I know that I said I wasn’t going to do anything for National Pregnancy and Infant Loss and Remembrance Day but I changed my mind.
I am honoring my babies by telling all of you that have been so supportive and loving and kind, thank you and I love you and I am grateful for your friendship.
This loss has made Hubby and I realize how lucky we are to have wonderful friends and family to cry with us, get angry with us and distract us from the pain. At least something good has come from all of this misery. I can never repay the kindnesses that I have received from friends both in “real life” and here in “cyberland,” I can only say I am truly grateful and touched.
Thank you.
Love Letters
October 2, 2008
I wish I could post the emails that I get from my dearest friends but there is a selfish part of me that wants them all to myself. I cherish them like they are little expensive chocolates given as a gift and I don’t want to share. I savor them, looking at them over and over until I finally devour them. These notes are so special and so wonderful that every single one has made me cry. The people who send these notes – Karla, Deb, Jess, Jenn-Jenn, Angie, KB, Gretchen, Frankie, Judy, Lou, Marilyn, Cindy and many others – they write down their warm thoughts and hopes and wishes for me, taking time from their own busy lives, jobs and families, putting aside their own happiness and problems to make sure that I know that they love me and miss me and hurt with me and for me. These notes are little gifts.
I used to feel lonely in my grief. When this first happened, I felt all alone and frustrated – like I wrote about in yesterday’s post. I obviously still have days like that. I would wrestle with bouts of hope and sadness, happiness and anger. I was starting to feel a little bipolar. I tried my little “gratitude list” where I would repeat things I was thankful for when the voices in my head turned dark and negative. It hard though, to try and talk yourself out of the negative. I am my own worst critic, my own worst enemy. That inner voice can talk me into a full blown meltdown quicker than even my mother – and that’s saying something.
So upon reading a really wonderful, mascara-ruining, snot-icle creating (snot-icles are my hubby’s word for when you cry so hard that the snot hangs out of your nose like an icicle – a “snot-icle”), email this morning from Deb, I am taking these “love letters” and I am printing them out (what? You think I deleted them? Oh no…never) and I am carrying them with me in my purse. When that voice of doubt and sadness and anger and pain starts shouting to me, I am pulling out my love letters. When those feelings of sadness and self-doubt and worthlessness rear their ugly heads, I’m reading my letters. Even if I have to pull over on the way home from work, I will do it.
Besides, reading these letters are better than muttering to myself in Target like an escaped mental patient.
Deafening Silence
July 30, 2008
If you have lost a baby, you know immediately what I am talking about. It either happens right when you lose the baby or about 4 to 6 weeks later. People either immediately have no idea what to say to you and are in as much shock as you are that they simply don’t say anything, it’s uncomfortable, they don’t want to deal and they just walk away from you. Or about a month later, people just stop wanting to talk about it with you. The people closest to you – the best people – just break down and sob with you.
And really, it’s not their fault. I said to my neighbor (her baby was 1 week old when I lost Baby B and she had been hiding from me as not to upset me), “look, I know you don’t know what to say. I don’t know what to tell you say to me. Just hold me and tell me it will be okay and just listen to me cry.” And she did.
But see I am selfish and lonely and that’s why I told her. The lonely part has been because people’s memories have faded. I’m still sad and I am still angry. I think of my boys from the minute I get up to the minute I fall asleep. But for most people, this is sooooo last month (that was a joke). And it’s not their fault, it’s not. I’m not angry with anyone. It’s a self defense mechanism and I get that. No one wants to talk to the girl with the dead babies about the dead babies. It’s just really lonely.
And please don’t get the impression that I can’t talk to the hubby because I can. However, he needs to grieve in his own way, on his own terms. We talk, we cry but even he will tell you that they didn’t live in him for 4 months and 5 months so it’s different for him. He is dealing with a lot of helplessness because he couldn’t fix the boys and my crying doesn’t help him with that because then he wants to fix me.
And I am selfish because I really need people like Michelle, Kelly, Gretchen, Robin, Freda, Cousin Jennifer and Frankie because I cannot do this alone. I need these people to take me to lunch, take me to yoga, take me to get pedicures. I need people who call me and say, “how are you?” and really want to know that today, I can’t stop crying. That today, I cried so hard in the shower that I threw up. I need those people in my life right now.
Here is my point. These are the friends who make up for the people who found out about my boys but never said a word. It was hard to tell people what happened. I cried during every email and every message. The “telling people” process took a terrible toll on my husband because he wouldn’t let me deal with a lot of it. And there are people, family members even, who still 4 months later, STILL have never called or sent a card -nothing.
My father-in-law is one person that I am not afraid to call out. His actions have been unforgivable. This is the very definition of “deafening silence.” His silence has been so loud that it threatens to drown out the people who have done so much for us. It’s so painful to me that he just didn’t say ANYTHING. Not even the wrong thing, he just doesn’t seem to care enough to say anything. And that he would hurt my husband like that. My kind, sweet, loving, wonderful husband. How dare he do that to him? My father flew across the country to hold our hand when we lost Baby A and hubby’s father can’t even call his son. How could he do this to him? I won’t let the callous actions of someone like him take away from all the love and support that Husband and I have received. I won’t let him do that.
So in case I don’t say it enough, I really appreciate you, my friends. I love you. I thank you. I know I can be needy but please, stick with me, I will be better soon. You don’t have to say any magic words, just be there.
*There are a host of other people who have cried with me and I am grateful for those people even if they are not named here – all my Sigma Kappa girls, Leah, Auntie Gennie and Carl, the women from RHG, Aaron, the Stealth Volunteers….