Spiraling…

October 26, 2009

Yup, that’s me.  I’m spiraling into sadness once again.   This is just another month where I’m plotting and planning when Hubby and I are supposed to do ‘it.”  Yet again, I think “I shouldn’t have to be worrying about this….I should have two little boys to fuss over for Halloween.”

But I don’t.

The unconfirmed loss of last month has left me reeling…again….but why?  Why shouldn’t I be used to these losses?  Realistically, this is going to be our life – our reality –  until we conceive and carrying again past 23 weeks, why am I not used to that fact yet?  These feelings of grief and loss are exacerbated by the fact that I found out we can’t refinance our home to pay for adoption costs.  Apparently home prices have dropped in the area and we don’t have enough equity to take out a loan to cover the costs of adoption.  What a surprise that something didn’t work out for us….I’m shocked (that’s sarcasm in case you are new to my blog – nothing goes the way it’s supposed to for me – the universe hates me). 

Oh and there may be a third thing contributing to my downward spiral….On Friday, I tried to have a conversation with my mother about adoption and for some fucked up reason, she asked me if I was pregnant.  Sidebar: she makes it sound like an accusation when she asks….”Are you preg-a-nant?”  She sounds out the syllables just like that.  It makes me feel like she’s disapproving of me….this is the woman who said, “I don’t know how I feel about that…” when she bullied me into telling her I was pregnant with the boys.  Anywho, why the fuck would I be talking to her about adoption if I was pregnant and then I remembered, I had been pregnant up until Monday.  Just a little bit anyway so prehaps it was a valid question.  Still, she switched the subject after I said no and wanted to discuss her dog.  I try to have a relationship with her but really, I’m just being polite now…I really feel like she doesn’t want to hear anything of substance.  It’s strange, I used to tell her everything…

I want so badly to be pregnant again.  I have a myriad of friends who are pregnant – some getting ready to deliver any day now.  I feel so angry and hurt and left out and why?  This shouldn’t be new to me…this is where I’ve been since April 8th, 2008.  I should be used to standing in the shadows, used to the fact that I envy people who are pregnant, I should be used to disappointment.

I feel like such a disappointment.

is over.  Yup.  Yesterday morning.  I was sort of surprised but not really.  The nausea went away on Saturday and my breasts stopped hurting Sunday morning .  I had one of those moments (I call them “Sidney moments” after our puppy who, upon learning something or seeing something fascinating, cocks his head to the side and perks his ears up…sort of like, “huh.  Oh.  Okay.”).  It was a Sidney moment because I sat in bed Sunday and thought, “Hubby was right, we were pregnant.”  As a result of the BT, I’m guessing the embryo grabbed on (I did have implantation spotting which is why the negative test was so confusing) and then just didn’t have the genetic material necessary to keep growing and therefore, didn’t produce enough HCG to show up on a test.  Classic BT.  Despite what the movies tell you, it is possible to be slightly pregnant.  This is my 4th or 5th time proving that fact…I’ve lost count.  How much does that suck?

But, glass half full me is also happy that I clearly ovulated and got pregnant again.  I was worried since I hadn’t been pregnant since February – the Clomid experiment produced nothing and a 42 day cycle is not normal for me.  Only time I’ve had a cycle that long was when I was pregnant.  Hubby said the same thing, he was ready to call in the RE out of fear that something as wrong.  Good to know we already know what was wrong, it’s “just” the BT. 

Also, anyone else starting to notice a pattern here?  I seem to get pregnant in the Fall.  The boys were conceived in November, 2007.  I had two confirmed pregnancies in November and December 2008 and now this one.  Maybe I’m more like a bear than a panda.  I want to eat, get fat, get pregnant and hibernate until the cub comes.  I really, really want that….Prehaps it’s my love of Halloween…I get happy with the approach of my favorite holiday and I’m sure my mood has something to do with my ability to conceive…

Whatever.  There is always next month, right?  That seems to be the story of my life…next month, and then the next month, and then the next.

I love this time of year – the beginning of September which leads to Fall and October and Halloween – which is my absolute favorite holiday.  August is over and that’s a relief and it’s too early to worry about Thanksgiving and Christmas and the inevitable depression that will come from missing the boys.  September on the beaches in North Carolina is ridiculously lovely and Hubby and I usually take advantage of the lack of tourists to head out there at least a couple of times before the warm weather is gone.  Here at home, the leaves change to amazing jewel tones that this California girl didn’t think occurred in nature.  I marvel at the fireworks show that the trees put on.  October brings Mullet Festival (the fish, not the hair) and the informal family reunion.  In years passed, I have dreaded going but this year, I’m looking forward to it.  My best friend, M, will be coming for the State Fair in mid-October and I can’t wait.  And then Halloween…my favorite…I’ve already planned costumes for us and priced new yard decorations.  The mums are in bloom already and I need to put some in the yard…Fall and mums to me is like milk and cookies.

But my heart is heavy.  I thought I would be pregnant again.  All the way pregnant – not just the slightly pregnant that my body seems to be fond of but really, truly and totally pregnant.  But not yet, not that I know of anyway….

My birthday was yesterday and I haven’t cried that much on my birthday in I don’t know how long.  I cried for the boys, I cried because of an insensitive comment said to Hubby in my presence that morning (“So Hubby, got anymore offspring?”), I cried for Craig and Mirne and baby Jet, I cried for the baby that would have been had I not miscarried in December.

In the midst of all my tears, I laughed a lot too.  I was reminded how loved I am.  I was reminded that in the midst of all the pain that I feel, people care for me, people think of me, people root for me.  I had over 60 messages on Facebook wishing me a happy birthday, numerous cards came in the mail, and I got a ton of phone calls throughout the day.  For someone feeling all alone with her grief, that’s powerfully healing. 

I think the hardest I laughed yesterday was when I got my gift from Hubby.  Hubby saw my post about wanting to learn the violin or mandolin so he found me a beautiful violin for my birthday and a woman to give me lessons at lunch.  He said that he thought I needed “a little more music in my life.”  He’s right.  I know I don’t deserve him.  He’s amazingly kind, thoughtful and caring.  I’ve never met a man like him. 

Over dinner, I said to him, “I can play the violin for our baby when he won’t stop crying.  You know?  Play him to sleep.”  That’s the first time I let myself hope for a future baby in a long time.  I surprised myself when I said it.  It’s been months since I thought of OUR baby actually happening again.

So, next birthday, I will be playing a concert (using the loose definition of “concert”) at my house.

Hopefully, our baby will be there.

Long Distance Hugs….

June 30, 2009

Please head over to “Our Own Creation” and offer some hugs…their little bean had no heartbeat at the sonogram yesterday.

http://ourowncreation.wordpress.com/2009/06/30/the-morning-after/#comment-5031

Tell me again that life is fair….

I’m At A Loss…

June 8, 2009

Ha!  Get it?  “I’m at a loss” and I also suffer from recurrent pregnancy loss…that was funny.  Okay, not really.  Not a whole lot funny about this right now.  Or ever.

I just don’t know what to do anymore.  I had a little mini-breakdown on Saturday while Hubby was at karate.  I don’t feel like I’m pregnant this month and we all know, I’m pretty good at figuring out when I am pregnant (although, honestly, the more I think about it, the more I don’t remember having ANY symptoms with the boys other than PMS cramping and a positive test and in December, I had no symptoms initially until after the test…ummmmm, starting to wonder….).   I know Hubby was so convinced that the Clomid was going to be successful this month and I hate that I am going to have to tell him that it didn’t work this time.  Maybe next month.  That’s that the motto of our house, “maybe next month.”

I’m committed to the next two rounds of Clomid.  After that, honestly, I don’t know.  Maybe Hubby and I need to discuss other options.  What?  I have no idea.  We don’t have any of the money necessary for adoption or egg donation.  I’m don’t want to say it but we may need to accept that our life together will be childless.  It’s painful to say that but I just don’t know what else to do.  I’m not giving up but can’t keep getting my hopes up every month only to have them dashed or worse, get pregnant and have it end.  Plus, I’m starting to question whether I want to pass this along to my children.  Maybe this needs to end with me.  Maybe I am giving up.  I can’t make the decision for both of us but I just wonder, how success can we be if my heart is just not in it anymore?  Maybe the boys were it.  Maybe I’m just tired.  Maybe I need a break.

Maybe I just need a fucking win.

I’m A Druggie.

May 4, 2009

Hubby and I just got back from the RE.  Dr. S prescribed us 3 months of Clomid.  We presented our case with controlled fervor and vehemence including supporting evidence but without getting overly emotionally ($100k worth of law school finally paid off in my closing argument to my RE…who would have thought?).  She needed a minute to wrap her head around the idea since this is not the approved treatment for a balanced translocation.  She wanted to make sure that we understood the increased risk for multiples (which is way low with Clomid but increased for me because of my previous history of splitting eggs) but in the end, she saw no reason not to try it for 3 months.  The big selling point for her was that we were open to starting with Clomid rather than an injectible.  The injectible drugs hyperstimulate a large number follicles which is why you get 6-7 follicles dropping.  Clomid is more likely to stimulate 2 or 3 at the maximum.  Less chances for a litter. 

I did promise her that if we were successful with twins, that was it.  I was done.  I would never set foot in that office again. 

See, I’m not greedy, I just want a baby.

Being Honest

April 28, 2009

I answered a question in therapy last night honestly and opened up Pandora’s box.

The Dr. J said to me, “you know that you will have another baby, right?’

I didn’t answer her, so she asked me again and I told her, “Today?  No, today I don’t think that it will ever happen.”

Well that touched off a firestorm of Hubby and Dr. J telling me about self-fulfilling prophecies and the power of positive thinking and Hubby was angry with me because he thinks that if I’m not positive, we won’t stay pregnant.

I told him that when I do get pregnant, every minute of every day I think to myself, “please stay with me, please stick, please, please don’t go…”  I think, “this is the one, this is going to be the baby that stays with me…” And it doesn’t happen.  But I try not to get discourage – we try again with the ovulation tests and the timed sex.  That’s positive, right?

But some days…oh, some days I just can’t do it.  I can’t be positive.  I was positive that the boys were going to be fine.  I was cheerful and upbeat all the while my little boy was dying.  When I lost Baby A, I remained upbeat despite the pain of losing one of my babies, the agony of only knowing him for 18 weeks.  Like a lamb to the slaughter, I walked into UNC thinking that I was over-reacting and that I would be going to lunch with Hubby in an hour – him teasing me about being a hypochondriac.  And then Baby B was dead.  Don’t tell me about being positive all the time because some days, getting out of bed is the best I can do.  Positive got me nowhere with the boys.  I was positive that the universe wouldn’t take my boys from me and guess what?  They died.

I guess I am a little angry about this situation.  I feel like I have let Hubby down by admitting this to him and I hate disappointing him.  But that’s a lot of pressure to put on me, requiring me to be positive all the time, telling me that if I think for one minute that I won’t have a living baby that I’m causing it not to happen.  I have a genetic disorder, that’s what is causing the miscarriages and I’ve finally come to terms with what that means.

And about being positive…Every morning in the shower, I say an affirmation.  I say: “We will have a living baby.”  Somedays I cry because I want my boys and some days I think about babies-to-be…

That’s the best I can do right now.  That’s all I can do right now.  That’s going to have to be enough right now.

I Lit the Fuse…

April 21, 2009

Now let’s all watch the bomb go off….

My mother sent me an email over the weekend that simply said, “I miss you.”  That was it.  I didn’t respond because I was still very angry about the Easter confrontation and the manner in which she handled it.  I knew that I needed to say something to her about the way that she and I have been relating to each other lately.  I admit that I am not totally innocent in this situation.  I have not been honest with her about my feelings and I have, at times, given in and rewarded her negative behavior.  I knew that I needed to talk to her before therapy last night.  We are still in the midst of the Mexican stand-off in terms of phone calls so I responded to her email.  Here is what I said:

My therapist said I should write you a letter so here goes.
 
See, I miss you because you are my mother and I love you and I need your understanding and support right now.  Instead, I get passive/aggressive behavior like the conversation we had before Easter.  You didn’t ask me to come for Easter.  You assumed I was coming and then got angry with me when I told you we weren’t coming.  I understand that you were disappointed and I’m sorry for that.  You didn’t ask me why we weren’t coming.  I had to lie to you because you didn’t have enough respect for me not to call me at work and get upset with me.  I couldn’t talk about the reason why we weren’t coming in the office.
 
That week before Easter was a really bad week for me but you didn’t remember that was the when I delivered the boys.  The worst day of my life and you didn’t remember.  And that’s fine.  I understand that it may not have had the same effect for you as it did for me.  But that and the fact that I had a miscarriage over that weekend, that was the reason why I didn’t want to come for Easter.
 
In addition, your repeated comments that you are “ordering a girl next time” have often made me feel like because they were boys, my twins didn’t matter to you.  That hurts me.  I understand that you were disappointed they were not girls but I am not.
 
I feel like I can’t trust you because when I call to talk to you when I’m having a bad day, you call Tim.  The one time I reached out to you because I was in so much pain, I couldn’t breath, you repeatedly asked me what was wrong.  You know what’s wrong.  Then you tell me not to cry.  Why in the world would I not cry?  And then you called Tim.  If I wanted to talk to Tim, I would.  I have no problem talking to Tim.  I wanted to talk to you.
 
My boys died a year ago and I’m having a hard time.  I’ve had 5 miscarriages in the past year and I’m tired, physically weak, and emotionally exhausted.  For a little while, there are going to be times when you want me to visit and I can’t.  It’s not because I don’t love you or I don’t want to see you or Tim is keeping me from you.  It’s because I don’t feel good – emotionally or physically.
 
I don’t want to lie to you anymore and I’m not censoring my conversations with you.  If you say something that hurts me, I’m going to tell you that you’ve hurt me and I will just deal with the silent treatment that will likely follow. 
 
I love you and I wish we could have the relationship that we used to have but right now, I would just settle for being able to be honest with you and not have you get angry with me or behave as if I have done something intentional to hurt you.  And if I do hurt you, I assure you that it’s not intentional.
Yup, I sent it yesterday about 3:45pm.  That large “BOOM” that you all heard here in the South, that was me, blowing 9 years of passive/aggressive crap wide open.
God, I feel nauseous.

Support

April 20, 2009

I just can’t seem to get it together today.  I’m very weepy and it’s really annoying me. 

I found an online support group for people with the genetic issue (Balanced Translocation) that I have.  It’s nice because infertility support groups focus on people who can’t get pregnant.  While, I’m sure that’s maddening and frustrating and angering, that’s not me.  I get pregnant.  A lot.  Five times in the last year not including the boys.  And I miscarry.  A lot.  And so do these women.  I can’t say which is worse.  I don’t know.  Which would you chose?  Never, ever being pregnant or knowing that you are pregnant and waiting for it to end for the 5th time in a year?  I can’t walk in those shoes, I can only walk in the ones I have but I am here to tell you, this sucks.  I’m tired, I’m angry, I feel old, I feel hopeless.  And as a bonus, I’m so good at knowing that I’m pregnant, I don’t need a stupid test to tell me.  I’m the blood hound of knowing when I am pregnant.  Hence, not only do I know when I am but I know when I’m not anymore.  It’s a hard life to live right now and I am feeling really sorry for myself.

I am hoping this group will help a little bit because there are success stories.  One woman reminded me again today, “keep trying and it will eventually happen.”  It’s “eventually” that’s hard on me.

Also, I learned that the drug discussion that Hubby and I had with Dr. S. wasn’t so crazy.  As a reminder, Dr. S doesn’t want to give us fertility drugs because we are fertile but Hubby and I thought that if the drugs increase the number of eggs, wouldn’t that increase the possibility of viable ones (ones that don’t have the translocation or are balanced and therefore, able to sustain)?  Dr. S is reluctant to give a drug I don’t really need.  However, several people in the group have done this and they have been successful…

I’ll stick it out one more month without drugs but then we are having the conversation with Dr. S.  And if she isn’t up for it, I’ll head over to Duke.  UNC is chocked full of bad memories for me anyway…

Confrontation

April 14, 2009

I’m not good with confrontation.  My mother told me for a number of years that I was a drama queen.  I think, because of that, I tend to go the exact opposite way.  I’m no shrinking wallflower but I don’t confront people.  I shy away from conflict.  A friend recently made an insensitive comment and while it hurt me, I know she didn’t mean it so why call her on it.  Another friend has no problem telling her mother, “hey!  That hurts my feelings!” I can’t imagine doing that.  If I said to my mother, “you know, it hurts me when you tell me that you are ‘ordering a girl next time’ when you know that the loss of my boys is still painful,” she would tell me that I am being overly sensitive and dramatic and that it was a joke.*  Ha.  Funny.

Hubby and I spent most of our hour at the therapist talking about my mother.  The therapist suggested that I confront my mother on the hurtful things that she has said and done over the past year.  My friend F suggested a letter.  My cousin suggested waiting a couple of days and then calling her.  I don’t know if that will accomplish anything but as Cousin Jenn-Jenn said, what have I got to lose.

The reason for this latest discussion was Easter.  My mother expected me to come to her house for Easter (I don’t say “home,”  I have never lived at her house in the ‘Boro – “home” is with Hubby in Holly Springs or San Diego).  I didn’t know this.  I don’t celebrate Easter beyond making a ham and some sweet potatoes.  I’m not religious, don’t go to church and have nobody to hide eggs for so I’m not big on the holiday.  It’s just another day in the garden as far as I am concerned.  I would have liked to see my family but I had a reason for not going – I had another miscarriage at the beginning of the week and Tuesday was the anniversary of the day I delivered the boys, I was in no place to spend time with anyone.  I couldn’t take any time off from work to rest so by the time Friday rolled around, I was tired, weak and exhausted.  I know that I need to go to my mother’s house to help clean out her spare room but I just didn’t have the energy.

I’m supposed to be practicing “self-care” as well.  The therapist (let’s call her Dr. J) told me that it was perfectly acceptable to be a little selfish right now.  Everyday, I am supposed to do one thing for myself.  Walking at lunch with K, a yoga DVD, walking the dogs, gardening, reading a book, getting a massage – something, anything that reduces stress in my life.

Dr. J thinks that I can’t practice good “self-care” with this dark cloud of a maternal relationship hanging over me.  She says that I am grieving the loss of the boys AND this changed relationship with my mother and what I really need to be doing is working though my grief with the support of my mother.  Okay, I’ll buy that.  But how? How do I get THERE?  I want to be there.  I do.  But I fear that confronting her will only result in the “you-are-really-quite-sensitive-aren’t-you?” conversation.  And the letter?  The actual ACT of the letter will make her mad – as if I embarrassed her by writing the letter.

So where are we right now?  It’s called a “Mexican Standoff” in our house.  The first one who picks up the phone to call the other loses. 

I lose a lot.  On oh-so-many-levels, I lose a lot.

 

*Nope, I’m not kidding, that really did happen.  See these this post for other such insightful comments:

https://survivingbaby.wordpress.com/2008/08/29/i-dont-get-it-…ither-does-she/